JULY 2017 HYPOACTIVE NEWSLETTER

WORDS FROM HYPOACTIVE RIDER GAVIN WRIGHT

 

Hi Everyone,

If you were reading this newsletter in February, you'll remember how I proudly announced I had been invited to give a presentation about the experience of living with type 1 diabetes to the first-year cohort of medical students at Bond University. I'm even prouder to say that this has now been done - in fact, I got to do it right in the middle of Diabetes Week.

One of the main themes of the talk was compliance, or adherence. This is a notion these doctors in training have just been introduced to and relates to how well a patient sticks to a doctor's instructions or advice. An easy example of non-compliance would be a person with hypertension not taking their blood pressure pills. This isn't just annoying for doctors, it's a waste of resources when the patient ends up in ED or ICU after an MI (heart attack). But how does this relate to people with type 1 diabetes who manage their own condition? Well, it can. Even the simple act of forgetting an injection (which still happens to me regularly - about once every two years) can be regarded by the cool clinical eye as being non-compliant, and naturally, this is the kind of thinking that makes my blood boil. It's not patient-centred and it doesn't help anything.

So after a little bit of intro about the level of engagement and treatment needed to even attempt to manage type 1, I invited any of them who still considered me non-compliant when I'd finished to see me after the session. To discuss pistols at dawn.

Back in February I asked for any feedback, or input, from readers as to what might be important for me to say to these students and respondents were in complete agreement that doctors and other medical professionals could never understand what it meant to have to deal with this frustrating, difficult, dangerous condition every minute of the day, 24/7 (unless they had it themselves). So I hope I managed to pass on that strong feeling. They certainly seemed intently interested - it's not often they get a patient's perspective in their learning - and I got an energetic round of applause at the end, something I was assured is highly unusual.

So for this issue of the newsletter, I've decided to only use illustrations taken from my PowerPoint presentation from the talk (excluding those in important messages from our sponsors). Here's one now:

Hope the message is absolutely clear

For the final part of the presentation I introduced some role play. With three keen young volunteers I acted out three different versions of the same scenario, based on an experience I once had at a clinic. Being seen by a registrar I hadn't met before, I had the students act out the question this registrar asked me and then gave three different responses, inviting the cohort to speculate as to which of these actually occurred. I wanted to illustrate my need for doctors to make a bit of an effort.

The question put to me by the doctor was, 'So, you’ve got diabetes. Type 1 or type 2? Let me guess… type 2?' The first response I acted out was to visibly fall in love with the doctor and thank him tearfully. In the second I became distracted, looked away and didn't hear his follow-up question. In the third I leaned forward, stared him straight in the eye and said firmly, 'You've got to be f*#$ing joking.'

And I invite you to speculate also.

 

CONTENTS

HYPOACTIVE NEWS

  • Run Melbourne: HypoActive Team Event
  • Aug Fun Run/Walk/Ride: Get a Tan
  • AcT1vate: December Gets Closer

OTHER EXCITING STUFF

  • QLD HA Riders: Massive Ride Success
  • HA Committee: Exciting Opportunities
  • Sebstien Sasseville: Type 1 Motivator
  • Diabetes Victoria: FreeStyle Libre Education
  • JDRF One Walk: For a World without Type 1 Diabetes

An element of drama and diabetes

 

HYPOACTIVE NEWS

 

RUN MELBOURNE

Team Event this Weekend

If you still haven't registered for this event then you might just scrape yourself in if you get online now. Right now. Entries close at 1.00 pm on Friday as the event itself is on Sunday of this week.

This huge event now has the byword 'I Run This City' and this could so easily have the added phrase, 'With Type 1 Diabetes.' It's time to take in all of Melbourne’s iconic landmarks, feel the buzz of the live entertainment and soak up all the energy that Run Melbourne has to offer - and do it managing type 1 diabetes. Run Melbourne offers 5 km, 10 km and half marathon options and if you're in good shape for any of these then why not join our team?

Check out the event website here. If you're planning on running (or walking) in this event, then please join the HypoActive team. John Thompson has entered HA in the event, so for a password to join us or any info about meeting and teammates, get in touch with John here.

Giving some idea of multiple daily events

 

HYPOACTIVE FUN RUN/WALK/RIDE No 65

Get a Tan before the Start of Spring

Event Date: 27 Aug 2017

Even though it's been cold and dark (at night, anyway) and very windy on the last event, John Thompson's terrific get-togethers have been pulling in big type 1 crowds and people have been getting a huge amount of support and motivation from coming along and joining in on the last Sunday of every month.

August sees HypoActive back at the Tan Track: that amazing loop around Melbourne's Botanical Gardens. Everybody is always welcome, regardless of your fitness level and you determine how far you want to run/walk/ride and how fast. The other option is just come and meet everyone at the Café - Domain Brasserie - for refreshments around 10.30 am. It would be a pleasure to see you there.

For more details check out our HA webpage here. If you think you can join us or need to know more, please get in touch with John Thompson here.

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FreeStyle Libre Real World Results
Real-world data from more than 50,000 people show that higher rates of scanning with the FreeStyle Libre system were found to be strongly associated with improved glucose control. MORE SCANNING: Users checked their glucose levels an average of 16.3 scans per day. As scan rates increased, the following trends were observed: IMPROVED HbA1c: Average glucose level decreased as scan rate increased with estimated HbA1c decreasing from 8.0 to 6.7 percent. REDUCTION IN HYPOGLYCAEMIA: Time spent below glucose levels of 3.9, 3.1 and 2.5 mmol/L decreased by 15 percent, 40 percent and 49 percent. REDUCTION IN HYPERGLYCAEMIA: Time above 10 mmol/L decreased from 10.4 to 5.7 hours per day. INCREASED TIME IN RANGE: Time in glucose range (3.9-10 mmol/L) increased from 12.0 to 16.8 hours per day. Order your FreeStyle Libre today at www.FreeStyleLibre.com.au!

The FreeStyle Libre Flash Glucose Monitoring System is a glucose monitoring device indicated for detecting trends and tracking patterns in persons (aged 18 and older) with insulin dependent diabetes mellitus. Health care professionals and consumers should be aware about the limitations of available scientific evidence for use of this device in any other groups of patients who require diabetes management. † Data on file. Dunn T, Xu Y, Hayter G; Evidence of a Strong Association Between Frequency of Flash Glucose Monitoring and Glucose Control Measures During Real-World Usage. All work was funded by and the authors are employees of Abbott Diabetes Care. Ask your healthcare professional how a FreeStyle glucose meter may assist you. Always read the label and use only as directed. FreeStyle and related brand marks are trademarks of Abbott Diabetes Care Inc. in various jurisdictions.

 

ACT1VATE 2017

Register Now. Right Now.

Event Date: 2 - 3 Dec 2017

AcT1vate is a residential weekend dedicated to helping you, your partner - or your patients with type 1 diabetes - get the most out of exercise. There are talks, forums and plenty of different exercise sessions, but none that will take you beyond your level of confidence. There are always accomplished type 1's at AcT1vate, but it is also the perfect event for people who have type 1 and want to start with exercise - but just need to know more. It isn't just useful, it's enlightening, inspirational, life-changing. Exercise is essential for good health, but there are many things that get in the way for people with type 1. Let's get them out of the way!

Registrations are open for AcT1vate in December. Places are being taken up keenly, so if you are considering coming along, and it's one of the best decisions you could ever make, have a look now and think about blocking out that important weekend in your calendar. Check out our latest webpage here for lots more info. Or if you want to register right now just click here.

Register Now

 

Peer support: much more than the sum of all its parts

 

OTHER EXCITING STUFF

 

JUNE HA BRISBANE RIDE

Fab Four do the Loop

Huge thanks to Tim Leeman for scooping together type 1 riders for a brilliant spin round the famous Brisbane River Loop. Tim, Marty, Gary and Gavin kept up a healthy pace for around 40 km to end up back at South Bank for a variety of drinks including coffee. It was a chilly, but sunny morning and everyone felt great after the ride, especially for having spent active time in such excellent company - cycling type 1's.

The ride caused a fair bit of interest on the HypoActive Facebook page and it looks like this could be repeated regularly with even greater numbers. Watch out on the HA Fb page or here in this newsletter for future events.

Well should you, really?

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Dexcom CGM: Distributed by AMSL Diabetes

The Dexcom G5 Mobile Continuous Glucose Monitoring (CGM), with its Superior Accuracy (#1,2), is the only CGM System approved for you to dose without a fingerprick and can be shared directly onto a compatible Android or Apple smart device. Dexcom is now on the CGM Subsidy Initiative for eligible patients under 21, visit the NDSS website for details. For more information on the Dexcom range please visit the AMSL Dexcom G5 Mobile webpage or contact AMSL Diabetes on 1300 851 056.

#1. Bailey, Chang, Christiansen Clinical Accuracy of a Continuous Glucose Monitoring System with an Advanced Algorithm J Diabetes Sc Tech 2015 Vol 9(2) 209-214.  #2. Laffel Improved Accuracy of Continuous Glucose Monitoring Systems in Pediatric Patients with Diabetes Mellitus – Results from Two Studies Diabetes Technology & Therapeutics Volume 18, Supplement 2, 2016.

 

HYPOACTIVE COMMITTEE

We Need You

The HypoActive committee is the business. They are the coolest bunch of type 1's you could possibly imagine, giving some of their free time for one of the worthiest causes in the world - to facilitate getting other type 1's active and exercising, by communicating, supporting, sharing and providing real opportunities to get out there and get down with your peers.

And the magnificent thing is, you could be one of them. The committee does a variety of things behind the scenes and there's almost certainly something you could help out with. I used to tell people there was very little work and lots of free stuff, but I kept getting in trouble over the free stuff as there isn't any really, but this isn't something that needs to intrude into your life, it doesn't have to be a huge task. Why not get in touch, find out more and do your bit to help this amazing group carry on the good work?

Always good for a laugh, thanks to all those who made them

 

SEBASTIEN SASSEVILLE

Type 1 Super-Motivator

AMSL Diabetes is proudly hosting the Sébastien Sasseville Tour Down Under. Canadian speaker Sébastien will be talking at a series of events across Australia inspiring people living with type 1 diabetes and their families.

Sébastien has had type 1 since 2002 and since his diagnosis he has climbed to the top of Everest, completed the mythical Sahara race and in 2014 he faced the biggest challenge of his life: he ran across Canada from St. John’s, Newfoundland, to Vancouver - 7,200 km, or 170 marathons, in nine months.
Come along to see and hear about Sébastien’s unique journey with T1D.​ Check out our webpage here for dates, venues and a link to register for this amazing series of talks.

Way back when - one step up from administering insulin with a bow and arrow

 

FREESTYLE LIBRE EDUCATION SESSIONS

Brought to you by Diabetes Victoria

DV are holding these informative and very helpful three-hour sessions in August, October and November and are planning even more for next year. So if you feel you need to know more about this amazing new blood glucose monitoring system - how does it work? is it right for me? - why not book yourself in and get the good diabetic oil from the people who know.

We've got a special HypoActive webpage here with details of dates, cost and more. Check it out.

What I need from a doctor to start removing all those outer protective layers...and if they don't make that effort, they're in big trouble!

 

JDRF ONE WALK

For a World Without Type 1 Diabetes

Each year, JDRF One Walks around the world bring together around a million people to raise over $85 million for life-changing T1D research. This success is only possible because of the support, commitment and strength of our community. You can make a powerful impact by joining the global leader in T1D research for a fun, FREE family day out with a shared goal.

Walks are scheduled from September through to December.To learn more, find a Walk in your area (there are more than 40 locations across Australia) and register, check out the JDRF One Walk website here.

 

 

That's all for now.

All the best,

Gavin