OCTOBER 2017 HYPOACTIVE NEWSLETTER

WORDS FROM HYPOACTIVE RIDER GAVIN WRIGHT

 

Hi Everyone,

Australia's spring weather seems to have been unexpected and unfriendly, just like a bad hypo, but I hope you've been out there enjoying exercise whatever the elements have taxed you with. I had an hour and a half on my bicycle in the rain the other day and LOVED it. My Chucks were quite soaked through by the time I rolled home. Mind you, Queensland rain never does get cold, more refreshing than anything.

I actually found I reacted a little negatively to something far more surprising recently. Someone who has had type 1 a much shorter time than me sent me a link about a cure for type 1 diabetes. She was excited, but I felt the metal cladding of Ironman snapping up around me. I have defences against this. Have I turned into an old cynic? Have I just had far, far too many false, story-driven articles by uneducated journalists shoved in my face, so that I automatically expect anyone bringing the topic up to be making claims that can't be backed up, just for a headline?

Maybe. And actually, I was even more taken aback when I read the article. Because for the first time (ever?) I felt I was reading a plausible account of how there may be a real cure with us in a fairly short space of time. It might be the case that some day soon we will all have nothing in common but our love of exercise.

Here's a link to the article in Science Daily: Potential...reversal of type 1 diabetes

Now, I'm really not one to dive into conspiracy theories, but this potential cure, currently in Phase II clinical trials, isn't having a smooth ride. There are many millions going into development of new treatments. Even JDRF, which has raised billions for type 1 diabetes, switched its purpose a little while back. The good folks there had been devoted for many years to finding a cure, but now they raise money for prevention, treatment and a cure. All worthy fields for research, but I was kind of attached to a cure. And how is Dr Denise Faustman of Massachusets General Hospital doing with her research? She's getting no funding from anyone. And the potential cure she's trialing is a medicine already in existence and relatively cheap. And you simply don't get to Phase II clinical trials without some positive results.

Wouldn't that be amazing? If you could just pay a few visits to your pharmacist and call the whole thing off, rather than save up your thousands for the next big techno step in treatment. Have a read, see what you think.

 

CONTENTS 

 

  • November Fun Run/Walk/Ride: Plus Xmas BBQ
  • AcT1vate 2017: Life is about to Change
  • Murray to Moyne 2018: The Team Awakens
  • A Cure: Check out the News
  • World Diabetes Day: Let's Pancreas the Planet

 

Advertisement

Dexcom CGM: Distributed by AMSL Diabetes

The Dexcom G5 Mobile Continuous Glucose Monitoring (CGM), with its Superior Accuracy (#1,2), is the only CGM System approved for you to dose without a fingerprick and can be shared directly onto a compatible Android or Apple smart device. Dexcom is now on the CGM Subsidy Initiative for eligible patients under 21, visit the NDSS website for details. For more information on the Dexcom range please visit the AMSL Dexcom G5 Mobile webpage or contact AMSL Diabetes on 1300 851 056.

#1. Bailey, Chang, Christiansen Clinical Accuracy of a Continuous Glucose Monitoring System with an Advanced Algorithm J Diabetes Sc Tech 2015 Vol 9(2) 209-214.  #2. Laffel Improved Accuracy of Continuous Glucose Monitoring Systems in Pediatric Patients with Diabetes Mellitus – Results from Two Studies Diabetes Technology & Therapeutics Volume 18, Supplement 2, 2016.

 

HYPOACTIVE FUN RUN/WALK/RIDE No 68

And End of Year HypoActive BBQ Brunch

Event Date: 26 Nov 2017 

It's that time of year again. Time to celebrate achievements, make big plans for the future and make it all much better by doing it with other type 1's after a refreshing run, walk or ride round the park.

This year's celebratory event is once more at Kevin Bartlett Reserve in Burnley. The day starts with a meet at the usual time - 9.30 am (SHARP!). The Melway reference for the reserve is: page 59, B1. If you reach FR Smith Drive you'll find plenty of parking close to the sign for Collingwood City Soccer Club and you can see the sheltered BBQ area and playground equipment from there.

Snags, the food of type 1 gods

It would be great if you could come along and join in with this, our last exercise event for the year, but if you can't then you're very welcome to come and join in the lavish spread put on by HypoActive and the hard work of John and Kerri (thanks guys). Bring the family or a friend: everyone is welcome to share.

If you think you can join us, please let John know here so that we can make sure there's plenty for you to eat.

 

ACT1VATE 2017

Don't Miss Out - Register Now.

Event Date: 2 - 3 Dec 2017

Register Now

AcT1vate is a residential weekend dedicated to helping you, or your partner, manage type 1 diabetes and get the most out of exercise. We've got a whole pile of testimonials from type 1's who have come along in the past and found their lives changing as a result of what they learnt. There will certainly be people there who have considerable athletic accomplishments, but this weekend is also focussed on getting those of you who just need to know a whole lot more before you take the energetic step into regular exercise.

Places have been filling steadily for this amazing event, so with only a few weeks to go now is the time to sign up and claim your place among wise and the fortunate. Check out our latest webpage here for lots more info. Or if you want to register right now just click here.

Register Now

 

Advertisement

FreeStyle Libre Real World Results
Real-world data from more than 50,000 people show that higher rates of scanning with the FreeStyle Libre system were found to be strongly associated with improved glucose control. MORE SCANNING: Users checked their glucose levels an average of 16.3 scans per day. As scan rates increased, the following trends were observed: IMPROVED HbA1c: Average glucose level decreased as scan rate increased with estimated HbA1c decreasing from 8.0 to 6.7 percent. REDUCTION IN HYPOGLYCAEMIA: Time spent below glucose levels of 3.9, 3.1 and 2.5 mmol/L decreased by 15 percent, 40 percent and 49 percent. REDUCTION IN HYPERGLYCAEMIA: Time above 10 mmol/L decreased from 10.4 to 5.7 hours per day. INCREASED TIME IN RANGE: Time in glucose range (3.9-10 mmol/L) increased from 12.0 to 16.8 hours per day. Order your FreeStyle Libre today at www.FreeStyleLibre.com.au!

The FreeStyle Libre Flash Glucose Monitoring System is a glucose monitoring device indicated for detecting trends and tracking patterns in persons (aged 18 and older) with insulin dependent diabetes mellitus. Health care professionals and consumers should be aware about the limitations of available scientific evidence for use of this device in any other groups of patients who require diabetes management. † Data on file. Dunn T, Xu Y, Hayter G; Evidence of a Strong Association Between Frequency of Flash Glucose Monitoring and Glucose Control Measures During Real-World Usage. All work was funded by and the authors are employees of Abbott Diabetes Care. Ask your healthcare professional how a FreeStyle glucose meter may assist you. Always read the label and use only as directed. FreeStyle and related brand marks are trademarks of Abbott Diabetes Care Inc. in various jurisdictions.

 

HYPOACTIVE MURRAY TO MOYNE 2018

16th Year of this Amazing Type 1 Cycling Challenge

Event Date: 6 - 8 Apr 2018

The Murray to Moyne (M2M), HypoActive's founding event, is a spectacular team cycling challenge across the plains of western Victoria. It's a cycle relay and teams break up into small groups to take turns in covering the full 520 km from the Murray River all the way down to the mouth of the Moyne at Port Fairy - in just 24 hours.

For this event, HypoActive needs fast, strong riders to cover the distance, but our team is split into groups according to ability, so there is plenty of room for less accomplished type 1 cyclists and new riders are always very welcome. This year Leanne Full has boldly stepped forward once more to organise and captain the team. Leanne led HypoActives to major success in the 2016 M2M and I'm sure we're in for a fantastic event.

Right now Leanne is calling for riders and crew. Check out Leanne's post on the HypoActive Facebook page and shoot her a line for more info. It's the event of a lifetime and you can be part of it.

 

ANYONE FOR A CURE?

It could be Out There

As mentioned above, Dr Denise Faustman, director of Massachusetts General Hospital Immunobiology is currently at the Phase II level of clinical trials of a common, existing vaccination, used primarily against tuberculosis. It's a cheap vaccine that has already been shown to reverse advanced type 1 diabetes in mice. Phase I clinical trials (in humans) results are due to be published soon, but presumably they were positive. 

This vaccination works as a set of brakes for the immune system, having the effect of natural flora that we have lost over the centuries as our hygiene has changed. It could also be shown to help with other autoimmune conditions such as MS.

You can read all about it the Science Daily article here.

 

WORLD DIABETES DAY

Event Date: 14 Nov 2017

WDD is the world’s largest diabetes awareness campaign reaching a global audience of over 1 billion people in more than 160 countries. The campaign draws attention to issues of paramount importance to the diabetes world and keeps diabetes firmly in the public and political spotlight.

So that makes 14 November the perfect day to start a conversation with a stranger that goes something like this: 'Hello, today is World Diabetes Day - and I've got diabetes!'

Check out the event website here for info and inspiration.

 

That's all for now.

All the best,

Gavin